[featured image thanks to Kara O'Keefe (instagram: @karaokeefe)] Though I’ve been living with this condition unknowingly my whole life, it was 5 years ago, during my first year of university, that this illness finally made me take pause, that it started to change my life completely. When this happened, I was in my first year … Continue reading Ehlers-Danlos Syndrome – The Tip of the Iceberg
As I mentioned in my fall decor blog post, decorating is one of my new favourite ways to participate in and celebrate holidays! I strongly believe in our environment impacts us - it makes us feel good. An environment that's healing can make us feel safe and relaxed and that's one of the reasons why … Continue reading Modern Rose Gold Christmas
As many of you know, Gastroparesis is one of the conditions I deal with due to my genetic condition. What happens with gastroparesis is that it makes my stomach be really awful at digesting food. Because of that, I use TPN and a bit of tube feeds in order to “eat”. August is gastroparesis awareness … Continue reading Gastroparesis; Your Questions, My Answers
You just finished a long day at work and are pretty exhausted. You're looking forward to just getting home and resting but you decide to stop for coffee on your walk home. You know that all the local coffee shops have drive thru service only but you figure it shouldn't be an issue, you can … Continue reading Let’s talk about straws!
May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. This is not a full … Continue reading Moving into the light
When browsing social media, my feeds are regularly heavily populated with cute graphics sporting quotes encouraging its reader to “hustle harder”, with advertisements linking to blog posts teaching you how to make more money and be more successful, with influencers constantly promoting the newest and hottest products, and with people romanticizing a life of little … Continue reading Untangling Self-Worth from Productivity
So, it's been a long time since I've written here! During my last post, I wrote about my Christmas miracle and how I was really starting to look forward to the holidays. This Christmas was supposed to be a good one after spending the holiday the year before in the hospital. We planned things carefully … Continue reading Holidays & Hospitals
Christmas has always been my favourite time of the year. It's a time of magic; a time to be spent with family and friends; a time of joy, of togetherness, and of gratitude. It's a time where we all come together to celebrate the life we are given and the blessings we are given. The … Continue reading Christmas Miracles
One year ago today, I woke up early in the morning. As I slowly opened my eyes to see the world around me, I started to remember where I was. I gently rolled over on my blue plastic mattress, opening my eyes to the sight of my hospital room, the same room I had previously … Continue reading One year ago today
Growing up, I've always loved birthdays. I am a big fan of tradition and holidays in our family are full of them. Birthdays are like mini holidays; they happen often and are breaks from reality that we've always celebrated with food, family, and love. Not to mention that I also love gift giving! Finding someone … Continue reading 9 things on my 21st birthday
The Invincible Summer 