The only thing certain about life is uncertainty. There is one exception - death. It’s funny that death is the only thing we know is guaranteed but we avoid the topic. We avoid the topic like we avoid “negative” feelings because dying is only really seen as negative, as sad. Maybe because death brings a … Continue reading Here I Am, Whole
[featured image thanks to Kara O'Keefe (instagram: @karaokeefe)] Though I’ve been living with this condition unknowingly my whole life, it was 5 years ago, during my first year of university, that this illness finally made me take pause, that it started to change my life completely. When this happened, I was in my first year … Continue reading Ehlers-Danlos Syndrome – The Tip of the Iceberg
I'm an undoubtedly positive person, even with all the hardship illness has brought my way the last handful of years. Dealing with illness is hard and dealing with a rare disease has its additional hardships. In this post, I'm going to share my secret to having a positive attitude and that is to “fake it … Continue reading Faking it ’till I Make it
Credit to Kumquat Designs When Chelsea Gagnon was born 29 years ago, they knew there was something special about her from the start. She was born with meconium ileus, a disorder causing a blockage in her intestines, which she needed surgery to correct. After the surgery, Chelsea’s doctors did more testing and found out that … Continue reading Cystic Fibrosis & Advocacy // Meet Chelsea Gagnon
As many of you know, Gastroparesis is one of the conditions I deal with due to my genetic condition. What happens with gastroparesis is that it makes my stomach be really awful at digesting food. Because of that, I use TPN and a bit of tube feeds in order to “eat”. August is gastroparesis awareness … Continue reading Gastroparesis; Your Questions, My Answers
You know those memories we have that just stick with us forever? The ones that we will always remember in detail? That shook you to your core in a way that you will never forget? For me, ones of those memories was the first time I was told that I needed to start using a … Continue reading The Superpower Named Acceptance
You just finished a long day at work and are pretty exhausted. You're looking forward to just getting home and resting but you decide to stop for coffee on your walk home. You know that all the local coffee shops have drive thru service only but you figure it shouldn't be an issue, you can … Continue reading Let’s talk about straws!
May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. This is not a full … Continue reading Moving into the light
So, it's been a long time since I've written here! During my last post, I wrote about my Christmas miracle and how I was really starting to look forward to the holidays. This Christmas was supposed to be a good one after spending the holiday the year before in the hospital. We planned things carefully … Continue reading Holidays & Hospitals
Christmas has always been my favourite time of the year. It's a time of magic; a time to be spent with family and friends; a time of joy, of togetherness, and of gratitude. It's a time where we all come together to celebrate the life we are given and the blessings we are given. The … Continue reading Christmas Miracles
The Invincible Summer 