May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. This is not a full … Continue reading Moving into the light
So, it's been a long time since I've written here! During my last post, I wrote about my Christmas miracle and how I was really starting to look forward to the holidays. This Christmas was supposed to be a good one after spending the holiday the year before in the hospital. We planned things carefully … Continue reading Holidays & Hospitals
Christmas has always been my favourite time of the year. It's a time of magic; a time to be spent with family and friends; a time of joy, of togetherness, and of gratitude. It's a time where we all come together to celebrate the life we are given and the blessings we are given. The … Continue reading Christmas Miracles
One year ago today, I woke up early in the morning. As I slowly opened my eyes to see the world around me, I started to remember where I was. I gently rolled over on my blue plastic mattress, opening my eyes to the sight of my hospital room, the same room I had previously … Continue reading One year ago today
Growing up, I've always loved birthdays. I am a big fan of tradition and holidays in our family are full of them. Birthdays are like mini holidays; they happen often and are breaks from reality that we've always celebrated with food, family, and love. Not to mention that I also love gift giving! Finding someone … Continue reading 9 things on my 21st birthday
My routine over the last few years has stayed fairly consistent no matter what month of the year. It mainly consisted of running from appointment to appointment, test to test, spending more time with my doctors and other medical professional than my friends. Not only did I spend much of my time in the same … Continue reading The summer of self-discovery
Three summers ago, I was laying in a hospital bed in the fourth floor of our local hospital. I slowly try and pull myself up in bed, the new incision in my stomach pulling and causing pain. After I sat up, I hesitantly walked over to the mirror by my bed in a hunched over … Continue reading How social media helps (and hurts)
This past year was probably the toughest year of my life. With my health posing lots of challenges, I had a lot of hurdles to overcome and mountains to climb. Yet, because of all of this, I learned so many beautiful lessons I would like to share with all of you. I realized how much … Continue reading 2016.
I've had this sense of impending doom overhead for the last little bit. It first started out with my birthday last week. Last years birthday wasn't so great. I had just been discharged from the most mentally, physically, and spiritually draining hospital stay. Needless to say, I didn't have the energy nor necessarily the desire … Continue reading On Turning 20 & Decision Making
Picture the worst stomach flu you've ever had. Imagine the nausea, how awful you felt, how you couldn't keep any food down. Now, imagine that feeling never ever went way. You thought you just had a flu but you never got better. That's what it's like living with gastroparesis. Out of the handful of diagnoses … Continue reading Gastroparesis: The Basics
The Invincible Summer 