I'm an undoubtedly positive person, even with all the hardship illness has brought my way the last handful of years. Dealing with illness is hard and dealing with a rare disease has its additional hardships. In this post, I'm going to share my secret to having a positive attitude and that is to “fake it … Continue reading Faking it ’till I Make it
Tag: rare disease
Let’s talk about straws!
You just finished a long day at work and are pretty exhausted. You're looking forward to just getting home and resting but you decide to stop for coffee on your walk home. You know that all the local coffee shops have drive thru service only but you figure it shouldn't be an issue, you can … Continue reading Let’s talk about straws!
Moving into the light
May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. This is not a full … Continue reading Moving into the light
One year ago today
One year ago today, I woke up early in the morning. As I slowly opened my eyes to see the world around me, I started to remember where I was. I gently rolled over on my blue plastic mattress, opening my eyes to the sight of my hospital room, the same room I had previously … Continue reading One year ago today