You know those memories we have that just stick with us forever? The ones that we will always remember in detail? That shook you to your core in a way that you will never forget? For me, ones of those memories was the first time I was told that I needed to start using a … Continue reading The Superpower Named Acceptance
Tag: mobility aid
Let’s talk about straws!
You just finished a long day at work and are pretty exhausted. You're looking forward to just getting home and resting but you decide to stop for coffee on your walk home. You know that all the local coffee shops have drive thru service only but you figure it shouldn't be an issue, you can … Continue reading Let’s talk about straws!
Moving into the light
May is Ehlers-Danlos Syndrome awareness month. I wrote this in hopes of giving a better understanding of how *I* have experienced EDS throughout my life; keeping in mind that EDS is a spectrum meaning some people barely have any symptoms and can live normally and some have more severe symptoms. This is not a full … Continue reading Moving into the light
The summer of self-discovery
My routine over the last few years has stayed fairly consistent no matter what month of the year. It mainly consisted of running from appointment to appointment, test to test, spending more time with my doctors and other medical professional than my friends. Not only did I spend much of my time in the same … Continue reading The summer of self-discovery
How social media helps (and hurts)
Three summers ago, I was laying in a hospital bed in the fourth floor of our local hospital. I slowly try and pull myself up in bed, the new incision in my stomach pulling and causing pain. After I sat up, I hesitantly walked over to the mirror by my bed in a hunched over … Continue reading How social media helps (and hurts)
Making the Most of Grad Week
After receiving my first Xolair injection about a month ago, I've been feeling pretty off. Actually, let's be honest here. I've been feeling awful. The day of the injection, I developed a headache, followed shortly by an earache and body pain, then proceeded by a crazy amount of nausea. I'm pretty used to living with … Continue reading Making the Most of Grad Week