[featured image thanks to Kara O'Keefe (instagram: @karaokeefe)] Though I’ve been living with this condition unknowingly my whole life, it was 5 years ago, during my first year of university, that this illness finally made me take pause, that it started to change my life completely. When this happened, I was in my first year … Continue reading Ehlers-Danlos Syndrome – The Tip of the Iceberg
Tag: feeding tube awareness
Gastroparesis; Your Questions, My Answers
As many of you know, Gastroparesis is one of the conditions I deal with due to my genetic condition. What happens with gastroparesis is that it makes my stomach be really awful at digesting food. Because of that, I use TPN and a bit of tube feeds in order to “eat”. August is gastroparesis awareness … Continue reading Gastroparesis; Your Questions, My Answers
Let’s talk about straws!
You just finished a long day at work and are pretty exhausted. You're looking forward to just getting home and resting but you decide to stop for coffee on your walk home. You know that all the local coffee shops have drive thru service only but you figure it shouldn't be an issue, you can … Continue reading Let’s talk about straws!
The summer of self-discovery
My routine over the last few years has stayed fairly consistent no matter what month of the year. It mainly consisted of running from appointment to appointment, test to test, spending more time with my doctors and other medical professional than my friends. Not only did I spend much of my time in the same … Continue reading The summer of self-discovery
This past year was probably the toughest year of my life. With my health posing lots of challenges, I had a lot of hurdles to overcome and mountains to climb. Yet, because of all of this, I learned so many beautiful lessons I would like to share with all of you. I realized how much … Continue reading 2016.
On Turning 20 & Decision Making
I've had this sense of impending doom overhead for the last little bit. It first started out with my birthday last week. Last years birthday wasn't so great. I had just been discharged from the most mentally, physically, and spiritually draining hospital stay. Needless to say, I didn't have the energy nor necessarily the desire … Continue reading On Turning 20 & Decision Making